READ-OUT Survey

University of Cambridge

New blood tests could transform how dementia is diagnosed — making it faster, simpler, and more accessible. We want to understand how people feel about these tests and what matters when deciding whether to take one.

READ-OUT

Step 1 of 108

Consent and risk statement(Required)

We ask for you throughts on:

• Blood tests for Demetia

• The best way to explain these tests

• This survey should take 10-15 minutes to complete

Data from this survey will:

• Be entirely anonymous. We won't collect any information which might identify you.

• Be stored securely on University of Cambridge servers. It may be shared with other people who are interested in this research

Please note that the explanations here do not replace seeking medical advice from a qualified professional.

By clicking “I Agree” below, you give informed consent to participate in this survey. You acknowledge that you have read and understood the information provided about the survey's purpose, and the confidentiality of your responses.

Your participation is invaluable - thank you for contributing to this important research!

General information about how the University uses personal data can be found here https://www.information-compliance.admin.cam.ac.uk/data-protection/research-participant-data

This research has received ethical review from the University of Cambridge Human Biology Research Ethics Committee

I Agree

Section 1: Demographic background

How old are you?(Required)

18-24

25-34

35-44

45-54

55-64

65-74

75-84

85 and over

Are you?(Required)

Female

Male

Another gender

Prefer not to say

What is the highest degree or level of school you have completed?(Required)

Less than high school (e.g., secondary school, to age 15/16 CSEs, O-levels)

Further education (e.g., A-levels, sixth form, college diploma)

Bachelor's degree

Postgraduate degree

How would you describe your ethnicity?(Required)

Black or African

East Asian

Hispanic or Latino

Indigenous

Middle Eastern or North African

Mixed or Multiple Ethnic Groups

South Asian

Southeast Asian

White

Other

Prefer not to say

Other (Please specify)(Required)

Choose the country that you live in(Required)

Which of the following best describes you? (You can tick more than one category)(Required)

I have dementia or other memory problems (for example mild cognitive impairment)

I care/have cared for someone with dementia

My friend or family member had/has dementia

My work is related to dementia

None of the above

Prefer not to say

What do you think your risk is of developing dementia in the future ?(Required)

(1 = Very low, 2 = Low, 3 = Somewhat low, 4 = Neither low nor high, 5 = Somewhat high, 6 = High, 7 = Very high)

1	2	3	4	5	6	7

Blood tests are not 100% accurate in diagnosing medical conditions. What level of accuracy would you want, before having a dementia blood-test?

If you had memory problems already, what is more important to you, having a blood test to rule out dementia or having a blood test to confirm dementia?(Required)

Rule out dementia

Confirm dementia

Both are equally important

If you are still well, but worried about dementia in the future, what is more important to you, having a blood test to rule out dementia or having a blood test to suggest dementia is likely in the future?(Required)

Rule out dementia in the future

Confirm dementia in the future

Both are equally important

If you are still well, but worried about dementia in the future, how far ahead would you want the prediction of dementia to be?(Required)

Within 5 years

Within 10 years

Within 15 years

Any point in the future

If available, how likely is it that you would have a blood test for dementia if recommended by your doctor outside of a research study?(Required)

(1 = Very unlikely, 2 = Unlikely, 3 = Somewhat unlikely, 4 = Neither likely nor unlikely, 5 = Somewhat likely, 6 = Likely, 7 = Very likely)

1	2	3	4	5	6	7

There are different types of dementia. Treatment and outlook differ. How helpful do you think a blood test would be that helped to diagnose just one of the dementias (e.g., Alzheimer's) but not the other causes?(Required)

(1= Very unhelpful, 2 = Unhelpful, 3 = Somewhat unhelpful, 4 = Neither helpful nor unhelpful helpful, 5 = Somewhat helpful, 6 = Helpful, 7 = Very helpful)

1	2	3	4	5	6	7

How would you like to have a dementia test?

Please click and drag the options so the most preferred is at the top

How would you like to receive the results of a blood test that RULED OUT dementia?(Required)

(Tick all that apply)

In a face-to-face conversation with a healthcare professional

In a phone or video call with a healthcare professional

With a written report that I can read in my own time

With a link to my results online or in an App

With a family member or carer present

Include follow-up suggestions, like what to do next

I don't want to receive this information

Other

Other (please specify)

How would you like to receive the results of a blood test that CONFIRMED dementia?(Required)

(Tick all that apply)

In a face-to-face conversation with a healthcare professional

In a phone or video call with a healthcare professional

With a written report that I can read in my own time

With a link to my results online

With a family member or carer present

Include follow-up suggestions, like what to do next

I don't want to receive this information

Other

Other (please specify)

Some tests give definite answers, like an X-ray for a broken bone (yes or no). Other tests give a number, like the level of cholesterol or blood pressure. Other tests talk about the risk of illness as a probability, a percentage or odds. If a doctor gave you the results of a dementia test as a risk rather than a clear yes or no answer, would you want to know the result?(Required)

Yes, easily

Yes, with help to explain it

Perhaps, but not sure

Probably not

Your Views on Blood-Based Testing for Dementia

Understanding Preferences for Dementia Risk Blood Tests

In the future, doctors may use a blood test to help identify the early risk of dementia-related conditions. We would like to understand which kinds of test options people would prefer.

Each test option may differ in several ways, such as:

How accurate the test is
The type of test
The place where the test is done
The one-way travel time and travel cost to get there
The fee you pay for the test
How long you need to wait for the result
How the doctor gives you the result (for example, in person or by phone)

In the next questions, you will see some imaginary test options. Please imagine that you need to decide whether to take this kind of blood test, and choose the option you would prefer.

Please note: These options are only examples for research purposes. They are not real tests and will not affect your health.

Please click to continue(Required)